Condition: Neurofibromatosis

Also called: NF

NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2), formerly known as neurofibromatosis type 2.

Neurofibromatosis is a genetic disorder of the nervous system. It mainly affects how nerve cells form and grow. It causes tumors to grow on nerves. You can get neurofibromatosis from your parents, or it can happen because of a mutation (change) in your genes. Once you have it, you can pass it along to your children. Usually the tumors are benign, but sometimes they can become cancerous.

There are three types of neurofibromatosis:

NF1
NF2-related schwannomatosis.
SMARCB1-related schwannomatosis
LZTR1-related schwannomatosis
22q-related schwannomatosis
schwannomatosis-NOS

Genetic testing can he helpful in some cases to diagnose the different types of neurofibromatosis. There is no cure. Treatment can help control symptoms. Depending on the type of disease and how serious it is, treatment may include surgery to remove tumors, radiation therapy, and medicines.

Make NF Visible 2023

Clinical Trials

Search our clinical trials for those related to Neurofibromatosis.

Treatments and Procedures Related to Neurofibromatosis

UAMS Health providers perform and prescribe a broad range of treatments and procedures, some of which may not be listed below.

Providers Diagnosing or Treating Neurofibromatosis

Note that every provider listed below may not perform or prescribe all treatments or procedures related to Neurofibromatosis. Review each provider for availability.

Locations Where Providers Treat Neurofibromatosis

Note that the treatment of Neurofibromatosis may not be performed at every location listed below. The list may include locations where the treatment plan is developed during and after a patient visit.